Lindsay (1987 - 2013)

I write this blog post not even really believing what I'm writing. My dear friend Lindsay passed away today. She had alveolar soft-part sarcoma, a very rare sarcoma that has an extremely poor prognosis. But Lindsay had such a positive attitude. She did chemo, radiation, spinal surgery, craniotomy, rehab, OT, PT -- she did what needed to be done, with a smile on her face and a belief that she would beat this. She did yoga, was into nutrition -- she did everything she could to be healthy.We either met through LiveStrong or the "crazysexycancer" nutrition message boards; I can't remember which, to be honest. For over 5 years we emailed, Facebooked, texted -- while I was in NC, she was in NY, and we vowed that if I were to move back to NYC, we'd have to get together for cupcakes. And after I moved here, she relocated to MD to be near Hopkins for her treatment. She was there so often anyway. She loved the OBX, and shared my enthusiasm for pinkberry, Sperry Top-Siders, plaid shirts, the Rolling Stones, and the South.
After her two strokes earlier this year, I knew that wasn't good, but this was Lindsay: if anyone could overcome this, it was her. Capturing the whole thing on Instagram as she went along. When I wanted DBS (deep brain stimulation) for the tremors, I had planned on going to Hopkins -- I told her this, and she was so excited that we'd finally get to meet - under less than ideal circumstances, but if anyone could put a positive spin on things, it was her. We were both sad when it turned out I probably wasn't going to go for consultations about the surgery.

And today, scrolling down my Facebook newsfeed, I see that one of our mutual friends left her a message about how she "will be missed." My breath caught in my throat and I said out loud, NONONONONO. I immediately went to Lindsay's page. It was true. She had passed away earlier today. I'm stunned. I feel like this must have been sudden, because she was doing so well. I just don't understand the Universe.
I can't even believe this is true. Sending prayers and good thoughts to her parents and two brothers.

it's wednesday.

So my tremor's gotten significantly worse, and I spoke to my movement d/o doctor today. She said that stress definitely can increase the tremors, but we need to see if the increase continues to determine whether this level of intensity is here to stay. She then told me that a colleague of hers told her about octanoic acid, or caprylic acid, which is thought to possibly mimic alcohol's effect on tremors (i.e., temporarily calm them). I found the study. It's a small study, like she told me. 19 people. The supplement started to work nearly three hours after taken. But it worked. For some. So I went to the Vitamin Shoppe and bought the stupid supplement. I don't even want to get my hopes up, because if it doesn't work, I'll be even more disappointed.

I thought I would be back in Chapel Hill. I thought that being down South would have a calming effect on my whole body, inside and out, my stress levels, my happiness, etc. -- which would translate into a reduction or disappearance of the tremors. I was kind of banking on North Carolina being the remedy. But obviously, I need to reframe. I'm trying to minimize my stress levels, but that hasn't really been working lately, obviously.

My grandparents bought me an air conditioner, which feels like a delicious luxury here in NYC. Makes me never want to leave the house even more.

thought for the day.

Carolina. That is all.

again, people.

For the love of G-d. I just keep reminding myself to take deep breaths. Manhattan parents, I just cannot even. There was a father today with a little girl - she couldn't have been more more than four, five at the very, very most - and he asked for suggestions. So naturally, I suggested Fancy Nancy or Pinkalicious. Apparently she has all the Pinkalicious books already, and after looking at the glittery Fancy Nancy book, he said he doesn't want her to read more of "this stuff." Okay. I suggested Clifford, the big red dog. Nope, she has read ALL of those. How about Dr.Seuss? Yup, she's gone through those. All of them. Every single one. I suggested the Curious George series. The genius has read all of those. She's also read "The Velveteen Rabbit," every Madeline book, dad voted down "The Giant Dance Party" without even looking at it...get the hell out of here. If she's read every single one, get this girl a goddamn medal. He just wanted to get something so he could feel morally and intellectually superior so he wasn't buying a book about Caillou from Canada or a big red dog. The little girl would have been happy with anything. Although, really, she seemed pretty passive and didn't show attraction to anything but Pinkalicious when it was mentioned. What these parents don't seem to get is that no reading is in vain. You don't get  it, do you, people? Foster your child's interest. Make it fun. If they show an attraction to a book, take a look at it - don't dismiss it because it's not "intellectual" - if you show disdain, your kid will subconsciously pick up on that. Every time. Believe me. Even if they don't quite know what that feeling is.

There were maybe 3 or 4 kids who actually thanked their parents when they bought the books for them. It's sad when that's an anomaly. There were the few kids who were very sweet and said please and thank you and they were a joy, as were their parents. I wish there were more of them.

I know I sound crotchety and old, but seriously, the entitlement is just way too much. It's not even that - it's lack of basic manners and social skills. But what should I expect when parents actually don't even let the person in front of them put their change in their wallet before putting their own purchases in front of the person, practically forcing them out of the way. There are the parents who come up to the side of the desk while I am still helping the person in front of them - and they'll shove their stuff onto the table! Basic line etiquette, people. I thought we learned that in preschool, no? Or did we have to go to the gifted and talented preschool for that? Oh, snap. 

I also think maybe the whole competitive, driven academic thing is nagging me. I have been a gunner my entire life. Meaning I have been competitive in classes. Always doing the readings. Raising my hand. Honors classes. Honor Roll. Everything depended on it. And then in grad school, at UNC, everything depended on getting into a PhD program. And when I didn't, my entire world as I knew it dissolved. I had no idea who I was. I worked freelance and nannied for 2 years, and then applied to the MFA programs. At 30, I finally let go of the need to try and be the best. (and yes, I get the irony that I wound up at Columbia).  Maybe I've failed. Maybe I haven't. It's all in who's seeing the picture, I guess.

Another thing I don't get is this phenomenon of parents buying a gift for a child on the way to said child's birthday party. They have waited until they are en route to the party to get a gift. Making it essential that they get out of the store quickly. With the present wrapped. In the good ole' days, we used to go ahead of time and pick out a present, really take time with the decision, and then wrap it at home. I just don't understand this. Does this happen everywhere or just here? Is it a generational thing?

If I sound cranky, I am. I'm tired. I'm still not physically 100%. I have made absolutely no progress on my thesis because I'm always so tired or blah. My tremors are especially pronounced lately. My next appt is at the end of June, but what's the movement disorder dr going to do? There is no more medication to try. Klonopin dulls the tremors a little, but to see any real improvement, I have to take a full pill, which knocks me out, which does not bode well for taking it during the day. And it has a long half-life, so even if I take it at night, I have that "hung-over" and super tired feeling the next day, which is a bummer. And people, benzos are addictive substances. As Nancy Reagan taught me, "Just say no to drugs."

But parents, here's a gifted kid pro-tip: In the real world, people don't really give a shit if you're "gifted" or not. So along with buying whatever book you're buying, teach your child to say please and thank you. And I promise - promise - your child will not disintegrate if you tell her "no" to something. Hard as it may be to believe, it is, in fact, true. If you don't feel comfortable trying it at home, do it in a public place first, just in case.

what a day.

So.....staying in NY. Working (at a job I love, a kids/YA/teacher/parent bookstore), trying to write my thesis, reading a lot. My paternal grandmother passed away, making that three family members I have lost in less that a year and a half. Trying to find an angle into an essay on that. Still on one medication for tremors, at the lowest possible dose. I'm trying not to let the tremors interfere too much, but sometimes scanning things or in stressful situations they get bad. At least they did today.

Manhattan parenting....yeah. Getting an inside view. It's stressing me out, and I'm not even the kid. I don't know. I could never raise a child here. Parents are buying $50 books to get their children ready to take tests to get into Gifted and Talented Kindergarten. What could you possibly do in GAT kindergarten? Learn relaxation techniques during nap time? Meditate? And really, will that make a difference in your child's educational career path? I would wager a guess and say probably not. And honestly, if you keep pushing and pushing and pushing.....have you ever seen the movie "Little Man Tate?" Great example. A kid needs to know they're not *just* their achievements. They need to be allowed to screw up and read silly things and do messy projects and sometimes do things below their age level that they just love. A kid can only take so much pushing. Really. Because eventually, they'll internalize it and do it themselves, thankyouverymuch, and though this is good to an extent, if your self-esteem and identity is built around it, this can be not so great. Drive is wonderful, huge fear of failure is not.

Not every book has to Have a Message. Sometimes it can just be fun, like Pinkalicious. It's just important to instill a love of reading in the kid. Give the Intellectual Stimulation a break.
I read Madeline as a child and was not traumatized because she was an orphan.
I read Clifford the Big Red Dog and am not dumb because it's more "commercial."
I read the Berenstein Bears and am not morally deficient because they "don't always send the right message."
Christ, I read about Rainbow Brite and Strawberry Shortcake and My Little Ponies. I think I turned out okay. People are amazed at how much I read. This is why. Because I learned to love it at an early age. And, I happened to be good at it. It was/is My Thing.

If reading isn't your kid's thing or doesn't come easily, that's okay - my brother was/is an excellent artist and great with putting things back together. Not to mention he's much more logical than I am. Being smart manifests in all different kinds of ways. I wish I could remind some of these parents of that.